Thursday we met with the doctor. We told him how Chris throws up alot after the chemo so he is reducing the amount of cisplatin that Chris is given. Dr. also gave Chris a lecture about taking the Lovenox. Because Chris has had blood clots he is at 50 percent higher rate of getting them again. He reminded Chris of how being in the hospital in Florida would not be fun. He told him that if he didn't do it any other time that he should definitely do it just before we leave for our trip. He also added another anti nausea drug called Edeme (spelling ?). They put some in his IV and then the rest he takes orally for two days after that he takes another drug called Dexamethason for 3 more days. We don't know how much this drug will cost us. The first time they give it to you free with a coupon from manufacture. Lady next to us said that she pays $80.00 for it! Yikes!! Whatever it takes if it works. I told the doctor how he throws up so much that his back hurts so much that he can't walk. We also have children who have a very hard time listening to him throw up. One of them counts how many times he throws up. So far as of today he hasn't thrown up but been veerrrryyy tired. Also the hand that they put the IV in swelled to double the size. Not sure why that happened. He has been in a lot of pain. Been irritable with all of us because he is in pain (we all know how that goes - when we hurt we take it out on others). I've been trying to explain that to children. It's hard to watch him suffer. Can't stand chemo part of this.
Today is Rye's 15th bday!! Wow time flies. If I wanted to Rye could go and get his learners permit today to DRIVE!!! Ahhhhh!!! Sorry, I don't think I'm ready for that. Jacob and Tay love school. Tay is very excited about being on the safety patrol committee at school. He came home upset Friday because his turn comes when we are on vacation but I spoke with the teacher and he'll be ok. I told him he could stay home:) Poor Jacob missed fun Friday activity at school because I missed a paper in his back pack. Thursdays are really hard on me. We usually don't get home until 7pm, then we eat, talk, get ready for bed, read scriptures etc. It's crazy that sitting for 6 hours makes someone tired. It broke my heart to see him cry. I don't think that I will forget again. To hard to see those tears. Katie will go and see her new school this Thursday and Rye and Meg are enjoying cross country. And I am just trying to keep track of everyone's coming and goings:) Who knew five kids could keep someone so busy. Don't know how people do it that work or have more then five kids.
Hopefully, this week will go well with chemo. Interested to see how much drug will cost us.
This week we have Rye's bday, YM/YW, orthodontist appointments for Jacob and Taylor, PTA meeting, Pack Meeting (where Jacob will get his awards for scout camp), Katie goes to her new school, chemotherapy, Back to School Night, cross country, school work, and I'm sure other things that will pop up. Good to be busy - No time to think.
Love, Ricki